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ALS Cannot Stop Love

This weekend, Terri and her husband Jeff hosted their youngest son’s wedding reception on their front lawn. It was a beautiful event with absolutely perfect weather. Because of the COVID 19 pandemic, the young couple had to modify their wedding plans not once, but twice this year. But the day went off without a hitch. As mentioned, the weather was just gorgeous, as was the bride and the entire wedding party!

After a beautiful ceremony, a glorious cocktail hour, and a yummy dinner, the spotlight dances took place. The bride and her father danced for the crowd. However, the highlight of the evening went to Terri and the groom/son, Joshua. Both had preselected a more untraditional song to dance the Mother/Son dance: Justin Timberlake’s Can’t Stop the Feeling fit the bill!

With some help from some fun LED masks and wheelchair lighting, the dynamic duo wowed the crowd with their upbeat dance. Check out the moves here: Mother/Son Dance – Saenz Style. The video was viewed over 5500 times in a 24 hour period. Let’s share it with the world!

Overall, it was a beautiful wedding weekend. No matter what life throws at us, (ie., COVID, ALS, canceled event halls, etc.) we need to take in the moments – both big and small. There’s nothing like a tent full of loved ones to remind us all what is truly important in this world.

Terri continues to maintain her progress with ALS – she’s stable for the moment, and for that we are grateful. Our hope is that a cure is found soon for Terri and the 30,000 Americans living with ALS. A great start would be for the FDA to approve the Brainstorm treatment that Terri participated in the Mayo Clinic clinical trial back in 2015. Feel free to add your name to this petition to release NurOwn to all persons with ALS: https://www.change.org/p/fda-approval-for-life-saving-nurown-for-als-patients.